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Can Someone Help with Me with the Bags?
It’s 4:06 am. The house is unusually quiet. Coffee’s not even on. No worries- I’ll grab it at the airport. Time to go wake my youngest. Can you grab the bags? If You Like This Post Please Share Hide...
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We Made it to Hawaii
We made it. My poor little guy was tuckered though. He spent a lot of time looking out the window. Only a little bit of time sleeping. And the rest of the time crying. Over anything. He nearly slept...
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Day One of Evaluation- Allergy Skin Testing
Day Number One- 3 specialists-Allergy/Gastroenterology/Pulmonology 7 hours in the hospital-08:00-15:00 4 tantrums and 1 skin testing Take at look at the controls at the top row. The positive is...
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Sweating it Out
It’s still early here and Jakey is pretending to be asleep- crouched in the crumpled white bed covers sucking his thumb. He reminds me of Brianna. She loves to linger and wake up slowly too. Gabby? Out...
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A Little Sweat and Relaxation
Another busy day at Tripler Medical Center ruling out Cystic Fibrosis with a sweat test. Here we are as the electrodes are attached to Jake’s arm to stimulate his sweat glands. It worked. Look how much...
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A New Friend at Waikiki Beach
I think the highlight of today for Jakey came at the end. We wandered down to Waikiki beach to watch the sunset. He stood mesmerized by a little boy who very sweetly offered him a shovel and scooted...
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Sleepy Feet
Little sleepy feet. Soon we head over for the bronchoscopy and endoscopy. I’ve been warned he’ll be confused coming out of anesthesia. We have a relaxing day planned following. Maybe a little pool....
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Something’s Wrong
They found something on the scope- a swollen esophagus- may be eosinophilic esophagitis. Don’t ask I still have research to do. Now this morning his immunodeficiency labs came back abnormal. We will go...
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Unexpected Beauty
We have the weekend off to recuperate and rest before additional labs will be drawn. I played with these photos today working with the black and white and texturizing them to make some of them look a...
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I Just Wanted to Say Thank You
Today was a good day. At least it ended well which makes up for some of the tantrumming in the am. Bought a stroller and that has made all the difference. For me of course! Made our way down to the...
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